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England and Wales Court of Protection Decisions |
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You are here: BAILII >> Databases >> England and Wales Court of Protection Decisions >> United Lincolnshire Hospitals NHS Trust v N [2014] EWCOP 16 (21 July 2014) URL: http://www.bailii.org/ew/cases/EWCOP/2014/16.html Cite as: [2014] EWCOP 16 |
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Strand, London, WC2A 2LL |
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B e f o r e :
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United Lincolnshire Hospitals NHS Trust |
Applicant |
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- and - |
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N (by her litigation friend the Official Solicitor) |
Respondent |
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Nageena Khalique for the Respondent
Hearing dates: 15 July 2014
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Crown Copyright ©
Mrs Justice Pauffley :
Introduction and issue
Background summary
i) has severe cognitive communication impairment;ii) has not been able to follow any commands or engage in interaction;
iii) is unable to indicate a yes/no or a choice from objects or pictures;
iv) has been unable, due to her level of cognitive functioning, to engage in detailed communication assessment and it has not been possible to develop a reliable system of communication;
v) has a severe and global cognitive impairment;
vi) has been unable to engage with choice making or communicate preferences.
Views of N and her family
Evidence o f the jointly instructed expert
The legal framework
"An act, or decision made, under this Act for or on behalf of the person who lacks capacity must be done, or made, in his best interests."
"4(2) The person making the determination must consider all the relevant circumstances and, in particular, take the following steps.
(3) He must consider-
(a) whether it is likely that the person will at some time have capacity in relation to the matter in question, and
(b) if it appears likely that he will, when that is likely to be.
(4) He must, so far as is reasonably practicable, permit and encourage the person to participate, or to improve his ability to participate, as fully as possible in any act done for him and any decision affecting him.
(5) Where the determination relates to life-sustaining treatment he must not, in considering whether the treatment is in the best interests of the person concerned, be motivated by a desire to bring about his death.
(6) He must consider, so far as is reasonably ascertainable-
(a) the person's past and present wishes and feelings (and, in particular, any relevant written statement made by him when he had capacity),
(b) the beliefs and values that would be likely to influence his decision if he had capacity, and
(c) the other factors that he would be likely to consider if he were able to do so.
(7) He must take into account, if it is practicable and appropriate to consult them, the views of-
(a) anyone named by the person as someone to be consulted on the matter in question or on matters of that kind,
(b) anyone engaged in caring for the person or interested in his welfare, ...
as to what would be in the person's best interests and in particular as to the matters mentioned in ss (6).
...
(10) "Life-sustaining treatment" means treatment which in the view of a person providing health care for the person concerned is necessary to sustain life.
(11) "Relevant circumstances" are those-
(a) of which the person making the determination is aware, and
(b) which it would be reasonable to regard as relevant."
"5.31 All reasonable steps which are in the person's best interests should be taken to prolong their life. There will be a limited umber of cases where treatment is futile, overly burdensome to the patient or where there is no prospect of recovery. In circumstances such as these, it may be that an assessment of best interests leads to the conclusion that it would be in the best interests of the patient to withdraw or withhold life-sustaining treatment, even if this may result in the person's death. The decision-maker must make a decision based on the best interests of a person who lacks capacity. They must not be motivated by a desire to bring about the person's death for whatever reason, even if this is from a sense of compassion. Healthcare and social care staff should also refer to relevant professional guidance when making decisions regarding life-sustaining treatment.
5.32 As with all decisions, before deciding to withdraw or withhold life-sustaining treatment, the decision maker must consider the range of treatment options available to work out what would be in the person's best interests. All the factors in the best interests' checklist should be considered, and in particular, the decision-maker should consider any statements that the person has previously made about their wishes and feelings about life-sustaining treatment.
5.33 Importantly, section 4(5) cannot be interpreted to mean that doctors are under an obligation to provide, or to continue to provide, life-sustaining treatment where that treatment is not in the best interests of the person, even where the person's death is foreseen. Doctors must apply the best interests' checklist and use their professional skills to decide whether life-sustaining treatment is in the person's best interests. If the doctor's assessment is disputed, and there is no other way of resolving the dispute, ultimately the Court of Protection may be asked to decide what is in the person's best interests."
"However, any treatment which the doctors do decide to give must be lawful. As Lord Browne-Wilkinson put it in Airedale NHS Trust v Bland [1993] AC 789, which concerned the withdrawal of artificial hydration and nutrition from a man in a persistent vegetative state, "... the correct answer to the present case depends upon the extent of the right to continue lawfully to invade the bodily integrity of Anthony Bland without his consent. If in the circumstances they have no right to continue artificial feeding, they cannot be in breach of any duty by ceasing to provide such feeding" (p883). Generally, it is the patient's consent which makes invasive treatment lawful. ...
20. ... the fundamental question is whether it is lawful to give the treatment, not whether it is lawful to withhold it.
21. In Bland, Lord Goff (with whose judgment Lord Keith and Lord Lowry expressly agreed) pointed out that "the question is not whether it is in the best interests of the patient that he should die. The question is whether it is in the best interests of the patient that his life should be prolonged by the continuance of this form of treatment" (p868). To the same effect was Lord Browne-Wilkinson, at p884:
"... the critical decision to be made is whether it is in the best interests of Anthony Bland to continue the invasive medical care involved in artificial feeding. The question is not the same as, 'Is it in Anthony Bland's best interests that he should die?' The latter question assumes that it is lawful to perpetuate life: but such perpetuation of life can only be achieved if it is lawful to continue to invade the bodily integrity of the patient by invasive medical care."
22. Hence the focus is on whether it is in the patient's best interests to give the treatment, rather than on whether it is in his best interests to withhold or withdraw it. If the treatment is not in his best interests, the court will not be able to give its consent on his behalf and it will follow that it will be lawful to withhold or withdraw it. Indeed, it will follow that it will not be lawful to give it."
"the starting point is a strong presumption that it is in a person's best interests to stay alive this is not absolute. There are cases where it will not be in a patient's best interests to receive life-sustaining treatment". [para 35]
"The most that can be said, therefore is that in considering the best interests of this particular patient at this particular time, decision- makers must look at his welfare in the widest sense, not just medical but social and psychological; they must consider the nature of the medical treatment in question, what it involves and its prospects of success; they must consider what the outcome of that treatment for the patient is likely to be; they must try to put themselves in the place of the individual patient and ask what his attitude is or would be likely to be; and they must consult others who are looking after him or interested in his welfare, in particular for their view of what his attitude would be." [para39]
The balance sheet exercise
i) if successful, N would be kept alive for many more years and may be able to return to a relatively comfortable state at her care home where she was excellently cared for;ii) she would be spared the effect of non-provision of artificial nutrition and hydration as well as the associated risk of developing bed sores, tissue breakdown, iron and vitamin deficiencies;
iii) she would continue to experience life as a sensate being with a degree of awareness of herself and her environment;
iv) other medications, anti epileptics and anti depressants could be reinstated and would be likely to be beneficial;
v) she may gain pleasure from things which one of her care home carers (albeit that her close family members believe differently) consider she has derived pleasure company, some television programmes, some physical touch;
i) although her life will be cut short, perhaps by many years, she would be freed from the further pain and distress she may be suffering;ii) she would be spared further invasive surgical procedures as well as needle insertion for general anaesthetic, under severe restraint, with attendant trauma;
iii) she would not be subjected to the associated risks of insertion of a PEG or re-feeding syndrome;
iv) she would not be subject to a need for repeated restraint to achieve the required monitoring or repeated or prolonged sedation;
v) she would be freed from the indignities of her current situation;
vi) being allowed to die would accord with N's reported comment made prior to her brain injury as to her wishes and feelings should she be incapacitated in the context of a road traffic accident;
vii) by authorising the non-replacement of the PEG tube or other methods of providing artificial nutrition and thereby allowing N to "die with dignity", the court would be acting in accordance with what family members believe she would have wanted.
Discussion and conclusion